CENTER FOR COGNITIVE NEUROSCIENCE (CCN)
PATIENT DATABASE

Eileen Cardillo, D.PHIL.
Patient Coordinator


Phone: (215)573-8485
FAX: (215)573-7136
eica@mail.med.upenn.edu

University of Pennsylvania
Center for Cognitive Neuroscience
3710 Hamilton Walk, 3rd Floor,
Philadelphia, PA 19104

PUBLICATIONS

Newsletter, Issue #1
Newsletter, Issue #2
Newsletter, Issue #3
Newsletter, Issue #4
Newsletter, Issue #5
Newsletter, Issue #6
Newsletter, Issue #7
Newsletter, Issue #8

Newsletter, Issue #9
Newsletter, Issue #10
Newsletter, Issue #11

Patient Registries in
Cognitive Neuroscience Research:
Advantages, Challenges, and
Practical Advice, JOCN

 

CCN PATIENT DATABASE

NEUROPSYCHOLOGICAL STUDIES OF FOCAL LESIONS

The purpose of the CCN patient database program is to build a comprehensive registry from which to draw patients for future cognitive testing. The goal is to better characterize brain-behavior relationships by studying patients with relatively stable, focal lesions (such as those resulting from infarct or tumor resection). All patients receive a neuropsychological battery meant to assess a variety of cognitive capacities, such as language, memory, perception, problem solving and attention. The results of this testing, along with lesion descriptions, are included in the database so that CCN researchers can find patients who are appropriate for their research studies.

In addition to the patient database, there is a database of non-brain-injured subjects who may serve as controls for the brain-injured population. Subjects who do not have a neurological diagnosis (e.g., stroke, tumor, Parkinson's disease) are eligible for participation.

Several publications are associated with the patient database program. A biannual newsletter is sent to both patients and non-brain-injured controls, and it has become a major way in which researchers provide feedback about their projects. Additionally, in 2008 Dr. Lesley Fellows (former CCN post-doctoral fellow with Dr. Martha Farah) authored a JOCN article in which she detailed key issues involved with establishing a patient database at two major health centers, the University of Pennsylvania and McGill University. In her article, the CCN Patient Database is described as a model for for building patient registries.

Eileen Cardillo, D.Phil. BIOSKETCH

Education
D.Phil. (2005) University of Oxford, Experimental Psychology
B.S. (1999) College of William and Mary, Biopsychology


Post-Doctoral Training

Postdoctoral Fellow (2005-2007) Institute for Neural Computation and Center for Research in Language, University of California - San Diego
Post-Doctoral Fellow (2007-2011) Center for Cognitive Neuroscience and Neurology Department, University of Pennsylvania

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