Eileen Cardillo, D.PHIL.
Patient Coordinator
Phone: (215)573-8485
FAX: (215)573-7136
eica@mail.med.upenn.edu
University of Pennsylvania
Center for Cognitive Neuroscience
3710 Hamilton Walk, 3rd Floor,
Philadelphia, PA 19104
PUBLICATIONS
Newsletter, Issue #1
Newsletter, Issue #2
Newsletter, Issue #3
Newsletter, Issue #4
Newsletter, Issue #5
Newsletter, Issue #6
Newsletter, Issue #7
Newsletter, Issue #8
Newsletter, Issue #9
Newsletter, Issue #10
Newsletter, Issue #11
Patient Registries in
Cognitive Neuroscience Research:
Advantages, Challenges, and
Practical Advice, JOCN
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CCN PATIENT DATABASE
NEUROPSYCHOLOGICAL STUDIES OF FOCAL LESIONS
The purpose of the CCN patient database
program is to build a comprehensive registry
from which to draw patients for future cognitive testing. The goal is to
better characterize brain-behavior relationships by studying patients with
relatively stable, focal lesions (such as those resulting from infarct or tumor
resection). All patients receive a neuropsychological battery
meant to assess a variety of cognitive capacities, such as
language, memory, perception, problem solving and attention. The results
of this testing, along with lesion descriptions, are included in the
database so that CCN researchers can find patients who are appropriate for their
research studies.
In addition to the patient database, there is a database of
non-brain-injured subjects who may serve as
controls for the brain-injured population.
Subjects who do not have a
neurological diagnosis (e.g., stroke, tumor, Parkinson's disease) are
eligible for participation.
Several publications are associated with the patient database program.
A biannual
newsletter is
sent to both patients and non-brain-injured controls, and it has
become a major
way in which researchers provide feedback about their projects. Additionally, in 2008 Dr. Lesley Fellows (former CCN post-doctoral fellow with
Dr. Martha Farah) authored a JOCN
article in which she
detailed key issues involved with establishing a patient database at two
major health centers, the University of Pennsylvania and McGill
University. In her article, the CCN Patient Database is described as a model for
for building patient registries.
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Eileen Cardillo, D.Phil. BIOSKETCH
Education
D.Phil. (2005) University of Oxford, Experimental Psychology
B.S. (1999) College of William and Mary, Biopsychology
Post-Doctoral Training
Postdoctoral Fellow (2005-2007) Institute for Neural Computation and Center for Research in Language, University of California - San Diego
Post-Doctoral Fellow (2007-2011) Center for Cognitive Neuroscience and Neurology Department, University of Pennsylvania
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